It's telling, IMO, that Western cultures deals with suicidality with hotlines you can call. It's like some joke from gonzo journalism come to fruition. I don't know what the answer is, but as a person who's been suicidal, for me it wasn't a hotline. It's even more fitting, if not kind of perfect, that said hotlines farm your data and sell it. :chef's kiss: what else is there to say. Like just about everything else, callous people make money while vulnerable, sensitive people pay up. Beautiful world we live in ;). Please drink responsibly!
The NYT released an article[0], sorry paywalled, that discusses the effectiveness of the 988 hotline in lowering the number of suicides where it is available. Sadly, because of the joke that is mental health coverage in the US, that's as good of news as I've got for you. Mental health coverage isn't even available on the open market AMA (Obama Care), so 988 is the best we can offer.
What do you advocate for to help people contemplating suicide? WHat do non-Western culture do to "deal with suicidality"? The issue is that the hotline is selling the data and not that the hotline itself exists.
I've heard the Dutch one is is a little better. The ones in the USA aren't likely to do much more than call police to put a mental hold on you, during which the hospital will rack up so many bills that it would make anyone suicidal. And then yay, your gun rights gone forever, so if you are suicidal in part because you live in a dangerous impoverished shithole good luck defending yourself afterwards!
> Many people in mental health crisis fear that if they dial 988, law enforcement might show up or they might be forced to go to the hospital.
> But getting sent that kind of "involuntary emergency rescue" happens to around 1% of callers, suggests new data from Vibrant Emotional Health, the administrator of the 988 Lifeline for suicide and mental health crises.
This kind of thing is why I wouldn't touch a site like that. Websites, service providers, and internet-connected software that collects data from you can't be trusted even a little, so I avoid them to the greatest degree I can. The rule of thumb is that anything you tell to them, or any data you have put in their custody, is at risk.
I thought Europe was more careful about things like this. This is pretty bad, these people are vulnerable and they're just mining they're data for profit.
In this context, a social construct. In terms much more popular a century ago, a 'nation': A people who have some similarities in how they approach, in this case, a combination of 'privacy aspects in regards to business' and 'to what extent America can be trusted to be of similar social construct and thus likely to end up between company policy and legal principles at the same or a similar conclusion'.
Or to make it even simpler: The EU's written and unwritten rules, along with countries that closely track such things, such as Norway, Switserland, Iceland, etc.
I do want to mention though, while this is bad, I feel like we're singling out a site. Fact is, I've seen more places where this doesn't happen. Though, not at places that have such a strong social mission as this one. And while I've done my best to work at those places to get it fixed, there is a lot of inertia and simply ignorance. I'm not talking about small places either. I'm talking about non-tech places that make their profit to the tune of hundreds of millions of dollars.
The inertia, the fact that no one else seems to care at such a place. It's an issue. Then I'm always the odd one out and looked at funny. When it's fixed no one really gives a shit and now I'm "that guy". A small form of resentment stays in these people.
Just mentioning my experience. It's stuff like this kind of apathy that gets us a world where a place like a suicide hotline just ignorantly does this kind of stuff. Or at least, that's my hypothesis: it's ignorance and apathy.
There's probably not a lot of data on this which is why I'm sharing this anecdata. I hope it's better than nothing.
Other websites with similar societal impacts and responsibilities have already been covered in Dutch news before, from governments to health information websites to healthcare providers.
The 113 suicide prevention hotline works together with professionals but it's not an official health care provider as far as I know.
There are probably plenty of similar websites with similar problems, but 113 is well known within the Netherlands so it's a poignant example to use in the media.
Getting media coverage on this will probably make these organizations do better, at least until the next conversion improvement marketeer gets access to the backend.
Their chat service uses something called "sprinklr.com", blocked by my filters automatically, which calls itself "The definitive AI‑native platform for extraordinary customer experiences".
I have a similar outlook atm as one of "those guys."
Everything takes so long, nobody is held accountable. The most likely result of pushing for any type of positive outcome for basically anything is some form of punishment or social degradation.
And so, as of October 2024, I don't do it anymore.
I will also note that most of the things I see "being corrected" these days are entirely fictitious.
As an example is the Office of the Privacy Commissioner in Canada. They tossed out a valid complaint about Shaw (during Rogers buyout) for jurisdictional reasons. Then they are on the news making odd statements about (exclusively) OpenAI not being honest about using your data?
It's all a show it seems. I figured it needs to get a qhole lot worse before it can get any better.
I have moved to internal tooling creation and have airgapped a machine/tool each month this year so far. Just a laptop and my social phone remain networked.
> This website uses cookies
> We use cookies to personalise content and ads, to provide social media features
I know there are some services that send GDPR data removal requests on your behalf. I wonder if there are any similar services that send messages like "Why the hell do you need these cookies?" to website operators.
I hardly ever see these cookie banners as my browser blocks most of them, but I still think it would be great to rub the idea of "Your website doesn't need any non-technical cookies" in website operators' faces.
I have lately thought about how the only tech I am interested in now is to assist programming. Programming for programming. Eternal yak shaving. And a big part of that is that end-user digital technology is a dystopia. No, not dystopic, not going in a bad direction. Just dystopia. Vultures and thugs at every corner preying on every “convenience” and mistake that you could make.
It is also good for mindless entertainment in between the real things that sometimes happen. And listening to music.
For example version control. That’s the kind of the thing that I read about and want to program myself. Things that have nothing to do with end-user software.
Sounds like analytics data. The screen recordings of visits I particularly but. I despise when companies do that and act as if it's a normal thing. It might help your support when a user reports an issue but it's a massive violation of a user privacy and most users wouldn't have any idea it was even possible.
> Stichting 113 likely violated the General Data Protection Regulation (GDPR) by sharing this data. The GDPR states that extra care must be taken regarding the security of medical personal data, which includes contact with an anonymous suicide prevention hotline.
This is quite sad to think about in multitude of ways :-(
What I am not understanding is the case of why, why would dutch government or website do this, is it out of honest mistake/(incompetence?) or malice. There are so many competent & great dutch engineers and engineers in general, I refuse to believe that they couldn't find anyone ethical enough to take extra care regarding GDPR and sensitivity of the data in general.
> “At this moment, we are investigating what happened, how this could have occurred, what the potential impact has been, and what our next steps are,” the spokespersons aid. They didn’t say whether the trackers would be turned on again
I hope the investigation that they are saying in the articles goes swiftly to really find out the real reason as to why this ended up happening in first place and the reasons behind it are made public sooner rather than later.
> Though, not at places that have such a strong social mission as this one.
That's the shameful thing really. Yeah it's pretty common to have (GDPR violating) cookies and 'share all analytics' settings on by default with "privacy is very important to us" statements on the website. As "one of those guys" I see this all the time. For a commercial business it's just eye rolling, but these kinds of social good companies really should be held to a higher standard. With that standard just being "privacy by design please".
The websites' feedback form gave me a "try again in !minutes" error so frankly I think the dev team is malicious by incompetence. It's a very pretty site though, so at least there's that.
See my comment. My hypothesis is: ignorance and apathy that results in incompetence.
Using GA4 is just the normal thing right?
Look in a room full of marketing experts and they will say yes or shrug.
Look in a room full of tech people and you'll see all security experts and security adjacent people screaming HELL NO or simply giving a nuanced answer that ultimately comes down to "no". Some will do funny little dances, some probably even just praying to a sun or rain god because they just lost it at that comment. I know I would.
To answer: no GA4 is not just the normal thing. There is no normal. It's the dominant thing and it invades privacy like hell and the whole thing needs to be thought about in a different way. I'd advice almost everyone to stop smoking that Google crack pipe and roll your own or find an analytics friendly vendor.
Yea I got a bit rhetorical there, apologies for being a bit fed up with this situation.
Yes, my comment was published just one minute after yours so I only saw your comment after mine and I appreciated reading your comment (& upvoted it)
> Look in a room full of tech people and you'll see all security experts and security adjacent people screaming HELL NO or simply giving a nuanced answer that ultimately comes down to "no". Some will do funny little dances, some probably even just praying to a sun or rain god because they just lost it at that comment. I know I would.
But if that's the case, are we saying that when the website was being created, it was being created with no-one who was security expert or let alone security adjacent people?
This is what I had refused to believe because in my opinion, more due diligence within the structure should've taken place and if there was no-one competent within the team, then why not hire one who is?
I can't help but feel frustrated, this is probably gonna negatively impact people who have talked on such suicide prevention websites.
Literally these websites is to create a safe space and for a person to be heard, if one introduces the concept of tracking or even feeling tracked, I can't help but feel frustrated as to why, why not hire people who know about security especially for such websites and especially with these laws. I am unable to understand this to be more specific.
Not all websites are created with IT in the loop. And sometimes even if IT is in the loop, then they aren't privacy/security conscious enough.
I got to see this first-hand being part of a marketing department. IT was explicitly left out of the loop. Though that was a Fortune 500 company. I'm not saying it's the same situation for the organization of this article.
My point simply is: IT is not always in the loop when a site gets created. And I bet "not always" is putting it mildly.
Tribalism is a thing. Or at least, I call it tribalism.
"Show me the incentive and I'll show you the outcome". It's that kind of stuff, unfortunately.
Marketing people like the features they're getting, and Google and Meta are dominant, so big that they're the default, in the same way that we talk about github being the default option, and "no one ever got fired for choosing IBM / (big tech company of your choosing)". I wouldn't dream of saying they should choose something else, without researching and guaranteeing that nothing they'd ever want from GA (and they may not know everything they'll want in the future right now) is missing in the alternative. In a role (marketing) that's completely out of my wheelhouse. So I don't even bother.
> What I am not understanding is the case of why, why would dutch government or website do this, is it out of honest mistake/(incompetence?) or malice. There are so many competent & great dutch engineers and engineers in general, I refuse to believe that they couldn't find anyone ethical enough to take extra care regarding GDPR and sensitivity of the data in general.
Ask 100 random developers to setup a website, and to make sure the website owner should be able to see how many people visit the website, and probably 90 of those developers will default to setting up Google Analytics, just by "instinct".
People generally just continue with whatever they've learned, not revisiting the default choices they make, and it's been ingrained over decades that "Google Analytics is the best way to optimize your sales funnel" or whatever the marketers drink nowadays, so it'll take some time for these folks to revisit their decisions.
> People generally just continue with whatever they've learned, not revisiting the default choices they make, and it's been ingrained over decades that "Google Analytics is the best way to optimize your sales funnel" or whatever the marketers drink nowadays, so it'll take some time for these folks to revisit their decisions.
Perhaps you are right but what the duck does sales funnel mean in a suicide prevention website?
I mean, perhaps Google analytics might make sense anywhere else except this but perhaps you are right that there might be many dev's who don't know anything except G.A.
But I personally used to (still do) have the habit of searching open source alternatives to software themselves.
There are many alternatives present which value gdpr and can be self hosted easily.
I am unsure of what should be done if its case of ignorance rather than malice, malice can be fixed but ignorance is a greater systemetic issues and there are websites which help in fixing the gap of knowledge (like the ones I linked, esp alternativeto has genuinely helped me personally in many things) but the issue is that people might not even know or perhaps even bother with these websites too.
So is there any solution to such issues except awkward silences?
> Perhaps you are right but what the duck does sales funnel mean in a suicide prevention website?
It's just a random example what marketers and owners think about when choosing an analytics platform, not specific to a suicide prevention website. But also, think that the website owner has some "Goal" which in this context might be "Someone calls and didn't kill themselves", then they'd try to setup their analytics platform to give them concrete numbers and metrics about this "sales funnel".
> But I personally used to (still do) have the habit of searching open source alternatives to software themselves.
Me too, and I don't disagree with anything what you write.
But practically, among less-technical users, imagine your typical Windows dev who've written C# code for two decades and gets excited when Microsoft holds press-conferences, these people aren't seriously gonna re-evaluate their choices, they go with what they already know in 99% of the cases.
> So is there any solution to such issues except awkward silences?
Best you can do is be honest, forthcoming and help them understand if it feels like they don't understand. Ultimately, people won't try to solve things they don't see as issues, so the first step to take might be to clearly identify and show them what issues the current approach as, with concrete evidence and context.
I think it's more incompetence than malice. It's just such a standard thing for engineers to throw analytics tracking in every website/product they build. Although I am surprised not one person realised this might be a bad idea given the sensitive nature of the site.
[0]https://www.nytimes.com/2026/04/22/science/988-youth-suicide...
The hotline installed analytics software to help them do their job.
Do "non-Western culture have a better solution to suicidality?
> Many people in mental health crisis fear that if they dial 988, law enforcement might show up or they might be forced to go to the hospital.
> But getting sent that kind of "involuntary emergency rescue" happens to around 1% of callers, suggests new data from Vibrant Emotional Health, the administrator of the 988 Lifeline for suicide and mental health crises.
> After being confronted with this research, Stichting 113 temporarily suspended all measurement and analysis tools on its website.
It does not mean that this cannot happen, but the regulatory framework helps stop it.
Or to make it even simpler: The EU's written and unwritten rules, along with countries that closely track such things, such as Norway, Switserland, Iceland, etc.
I do want to mention though, while this is bad, I feel like we're singling out a site. Fact is, I've seen more places where this doesn't happen. Though, not at places that have such a strong social mission as this one. And while I've done my best to work at those places to get it fixed, there is a lot of inertia and simply ignorance. I'm not talking about small places either. I'm talking about non-tech places that make their profit to the tune of hundreds of millions of dollars.
The inertia, the fact that no one else seems to care at such a place. It's an issue. Then I'm always the odd one out and looked at funny. When it's fixed no one really gives a shit and now I'm "that guy". A small form of resentment stays in these people.
Just mentioning my experience. It's stuff like this kind of apathy that gets us a world where a place like a suicide hotline just ignorantly does this kind of stuff. Or at least, that's my hypothesis: it's ignorance and apathy.
There's probably not a lot of data on this which is why I'm sharing this anecdata. I hope it's better than nothing.
The 113 suicide prevention hotline works together with professionals but it's not an official health care provider as far as I know.
There are probably plenty of similar websites with similar problems, but 113 is well known within the Netherlands so it's a poignant example to use in the media.
Getting media coverage on this will probably make these organizations do better, at least until the next conversion improvement marketeer gets access to the backend.
Their chat service uses something called "sprinklr.com", blocked by my filters automatically, which calls itself "The definitive AI‑native platform for extraordinary customer experiences".
I suppose there's always the phone number.
Everything takes so long, nobody is held accountable. The most likely result of pushing for any type of positive outcome for basically anything is some form of punishment or social degradation.
And so, as of October 2024, I don't do it anymore.
I will also note that most of the things I see "being corrected" these days are entirely fictitious.
As an example is the Office of the Privacy Commissioner in Canada. They tossed out a valid complaint about Shaw (during Rogers buyout) for jurisdictional reasons. Then they are on the news making odd statements about (exclusively) OpenAI not being honest about using your data?
It's all a show it seems. I figured it needs to get a qhole lot worse before it can get any better.
I have moved to internal tooling creation and have airgapped a machine/tool each month this year so far. Just a laptop and my social phone remain networked.
I feel you. I wish the world was a better place, but here we are. I don't know what else to say about it. I feel you.
I know there are some services that send GDPR data removal requests on your behalf. I wonder if there are any similar services that send messages like "Why the hell do you need these cookies?" to website operators.
I hardly ever see these cookie banners as my browser blocks most of them, but I still think it would be great to rub the idea of "Your website doesn't need any non-technical cookies" in website operators' faces.
It is also good for mindless entertainment in between the real things that sometimes happen. And listening to music.
Could you give some specific examples?
This is quite sad to think about in multitude of ways :-(
What I am not understanding is the case of why, why would dutch government or website do this, is it out of honest mistake/(incompetence?) or malice. There are so many competent & great dutch engineers and engineers in general, I refuse to believe that they couldn't find anyone ethical enough to take extra care regarding GDPR and sensitivity of the data in general.
> “At this moment, we are investigating what happened, how this could have occurred, what the potential impact has been, and what our next steps are,” the spokespersons aid. They didn’t say whether the trackers would be turned on again
I hope the investigation that they are saying in the articles goes swiftly to really find out the real reason as to why this ended up happening in first place and the reasons behind it are made public sooner rather than later.
That's the shameful thing really. Yeah it's pretty common to have (GDPR violating) cookies and 'share all analytics' settings on by default with "privacy is very important to us" statements on the website. As "one of those guys" I see this all the time. For a commercial business it's just eye rolling, but these kinds of social good companies really should be held to a higher standard. With that standard just being "privacy by design please".
The websites' feedback form gave me a "try again in !minutes" error so frankly I think the dev team is malicious by incompetence. It's a very pretty site though, so at least there's that.
Using GA4 is just the normal thing right?
Look in a room full of marketing experts and they will say yes or shrug.
Look in a room full of tech people and you'll see all security experts and security adjacent people screaming HELL NO or simply giving a nuanced answer that ultimately comes down to "no". Some will do funny little dances, some probably even just praying to a sun or rain god because they just lost it at that comment. I know I would.
To answer: no GA4 is not just the normal thing. There is no normal. It's the dominant thing and it invades privacy like hell and the whole thing needs to be thought about in a different way. I'd advice almost everyone to stop smoking that Google crack pipe and roll your own or find an analytics friendly vendor.
Yea I got a bit rhetorical there, apologies for being a bit fed up with this situation.
> Look in a room full of tech people and you'll see all security experts and security adjacent people screaming HELL NO or simply giving a nuanced answer that ultimately comes down to "no". Some will do funny little dances, some probably even just praying to a sun or rain god because they just lost it at that comment. I know I would.
But if that's the case, are we saying that when the website was being created, it was being created with no-one who was security expert or let alone security adjacent people?
This is what I had refused to believe because in my opinion, more due diligence within the structure should've taken place and if there was no-one competent within the team, then why not hire one who is?
I can't help but feel frustrated, this is probably gonna negatively impact people who have talked on such suicide prevention websites.
Literally these websites is to create a safe space and for a person to be heard, if one introduces the concept of tracking or even feeling tracked, I can't help but feel frustrated as to why, why not hire people who know about security especially for such websites and especially with these laws. I am unable to understand this to be more specific.
I got to see this first-hand being part of a marketing department. IT was explicitly left out of the loop. Though that was a Fortune 500 company. I'm not saying it's the same situation for the organization of this article.
My point simply is: IT is not always in the loop when a site gets created. And I bet "not always" is putting it mildly.
Tribalism is a thing. Or at least, I call it tribalism.
"Show me the incentive and I'll show you the outcome". It's that kind of stuff, unfortunately.
No, I refuse being told what to do.
Everything in life is optional.
It seems that it is only temporary.
> “We realize that visitors must be able to trust that their privacy is protected and regret that concerns have arisen regarding this.”
They also regret that "concerns have arisen". No other regrets have been mentioned.
Ask 100 random developers to setup a website, and to make sure the website owner should be able to see how many people visit the website, and probably 90 of those developers will default to setting up Google Analytics, just by "instinct".
People generally just continue with whatever they've learned, not revisiting the default choices they make, and it's been ingrained over decades that "Google Analytics is the best way to optimize your sales funnel" or whatever the marketers drink nowadays, so it'll take some time for these folks to revisit their decisions.
Perhaps you are right but what the duck does sales funnel mean in a suicide prevention website?
I mean, perhaps Google analytics might make sense anywhere else except this but perhaps you are right that there might be many dev's who don't know anything except G.A.
But I personally used to (still do) have the habit of searching open source alternatives to software themselves.
https://alternativeto.net/software/google-analytics/?license...
https://openalternative.co/alternatives/google-analytics
There are many alternatives present which value gdpr and can be self hosted easily.
I am unsure of what should be done if its case of ignorance rather than malice, malice can be fixed but ignorance is a greater systemetic issues and there are websites which help in fixing the gap of knowledge (like the ones I linked, esp alternativeto has genuinely helped me personally in many things) but the issue is that people might not even know or perhaps even bother with these websites too.
So is there any solution to such issues except awkward silences?
It's just a random example what marketers and owners think about when choosing an analytics platform, not specific to a suicide prevention website. But also, think that the website owner has some "Goal" which in this context might be "Someone calls and didn't kill themselves", then they'd try to setup their analytics platform to give them concrete numbers and metrics about this "sales funnel".
> But I personally used to (still do) have the habit of searching open source alternatives to software themselves.
Me too, and I don't disagree with anything what you write.
But practically, among less-technical users, imagine your typical Windows dev who've written C# code for two decades and gets excited when Microsoft holds press-conferences, these people aren't seriously gonna re-evaluate their choices, they go with what they already know in 99% of the cases.
> So is there any solution to such issues except awkward silences?
Best you can do is be honest, forthcoming and help them understand if it feels like they don't understand. Ultimately, people won't try to solve things they don't see as issues, so the first step to take might be to clearly identify and show them what issues the current approach as, with concrete evidence and context.